Tuesday, 6 February 2018
10:30 – 17:30 | PRE-CONGRESS DAY FOR NURSES, PHYSIOTHERAPISTS, AND PSYCHOSOCIAL PROFESSIONALS | |
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10:30 – 13:00 | MULTIDISCIPLINARY SESSION | ROOM MADRID |
10:30 – 10:45 | Welcome Morning Theme: Caring for children and youngsters with haemophilia in Europe | Víctor Jiménez, Cédric Hermans, Rubén Cuesta-Barriuso, Elsbeth Müller-Kägi |
10:45 – 11:05 | Caring for children and youngsters with haemophilia in Spain: Nurse’s perspective | Sara García Barcenilla |
11:05 – 11:25 | Caring for children and youngsters with haemophilia in Spain: Physiotherapist’s perspective | Sofía Pérez Alenda |
11:25 – 11:45 | Growing up with haemophilia: health related QoL and psychosocial functioning | Lotte Haverman |
11:45 – 12:00 | Discussion and Q&A | |
12:00 – 13:00 | Multidisciplinary stepped case study | Chair: Martin Bedford |
13:00 – 14:00 | LUNCH BREAK |
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14:00 – 17:30 | PHYSIOTHERAPISTS SESSION | |
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14:00 – 17:00 | 3 x 45 min Workshops | |
ROOM LA HABANA | Workshop 1: Evidence of Orthopedic Manual Therapy in the treatment of chronic arthropathy | Benjamin Hidalgo, Rubén Cuesta-Barriuso |
ROOM MEXICO | Workshop 2: Exercise with multi joint arthropathy | Paul McLaughlin |
ROOM BUENOS AIRES | Workshop 3: Post bleed rehabilitation in children | Paula Loughnane |
17:00 – 17:30 | Discussion and Wrap up | ROOM BUENOS AIRES |
14:00 – 17:30 | NURSES SESSION | |
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14:00 – 15:00 | Interactive break out sessions | |
ROOM BOGOTÁ | For nurses new to haemophilia: Fundamentals of haemophilia | Elsbeth Müller Kägi |
ROOM LA PAZ | For experienced nurses: Challenges of providing care outside of and between Haemophilia Treatment Centres | Petra Elfvinge, Kristian Juusola |
15:00 – 15:15 | BREAK | |
15:15 – 17:00 | Nurse-led Research Chair: Martin Bedford | ROOM BRUSELAS |
15:15 – 15:45 | Exploring non-adherence in adolescents with haemophilia | Anne Hoefnagels |
15:45 – 16:15 | Experiences of being a father of a child with severe haemophilia | Linda Myrin Westesson |
16:15 – 17:00 | Behind the scenes of nurse-led research | Anne Hoefnagels, Linda Myrin Westesson |
17:00 – 17:30 | Discussion and Wrap up |
14:00 – 17:30 | PSYCHOSOCIAL SESSION | ROOM MONTEVIDEO |
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14:00 – 14:15 | Welcome & Introduction | Lotte Haverman |
14:15 – 14:45 | Quality of life and Adherence: influence of psychosocial factors | Ana Torres |
14:45 – 15:15 | Training program ‘Living with haemophilia’ | Ruud Bos |
15:15 – 15:45 | Camps: another way to live with haemophilia | Rocio Cid Sabatel |
15:45 – 16:00 | BREAK | |
16:00 – 16:30 | KLIK for children with bleeding disorders | Lotte Haverman |
16:30 – 17:00 | Pilot project of complex psychological care for adults with haemophilia | Petra Buckova |
17:00 – 17:30 | Exchange of clinical experience/cases – future of psychosocial committee EAHAD – Wrap up |
17:30 – 18:30 | NETWORKING RECEPTION |
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